Sunday 1 February 2009

Update

Sorry I have not posted for a while. Its been a very up and down time recently.
I am slowly coming to terms with the ''uncertainty'' of my scan results. I have spoken to the Hospice Dr and am trying to stay positive.
I met my new Macmillan nurse who is lovely. I was a bit nervous of going through my whole history with someone new but she put me at my ease and I think we are going to get on well. I think i went through a period of feeling very sorry for myself and am trying to move on with things
The occupational therapist came to see me at home. She was lovely and we basically reviewed the house together. I want to stay in our house as much as I can so we are looking at ways to adapt it to my needs. She has brough me a bath seat, cooking stool and a rail to help me in and out of bed.She is also going to arrange to have a seat put into my shower and rails on the stairs, by the front door and in both bathrooms. We are also looking at possibly getting a stair lift fitted.Everything will help.
I had devastating news last week. One of my close friends in the Operatic Society got rushed into hospital on the Tuesday with meningitis. Sadly she died only two days later. I was so upset -I had only spoken to her the day before so it was a huge shock. Carol was a wonderful person -warm, caring and always had a smile on her face. She was very supportive to me when I felt down and always had a joke or something funny to tell me which would always cheer me up. We worked very closely together on the executive committee and she was always willing to help out with anything that needed to be done. She always sat next to me at rehearsals and we would giggle our way through the evening. I shall miss her soo much. Both Gordon and myself went to her funeral last Friday and sung with the church choir. At times it was difficult to stop breaking down in tears but I tried really hard to sing for Carol. I am so sad she never got to perform in Gondoliers as she had a great love of Gilbert and Sullivan and was really looking forward to it. Carol - i will miss you so much but I know you will be smiling down on us xxx
Rehearsals for the show are going well -we have just one week till we opens. Its just a case of polishing bits and pieces, Learning the last bits of music and practising, practising, practising. We are all working very hard and hope that it will be a wonderful success.
I will try not to leave it too long before posting again!

3 comments:

dippykate said...

I am so sorry to hear about Carol and as you say it is devastating. Like you said I'm sure she will be smiling down at you and enjoying your production of The Gondoliers. I would have loved to have come to see you but I can't drive that far at night now.
I've been really pleased with what the occupational therapist has offered me. I do now have a stairlift and it is wonderful!!! I also have a hydraulic bathseat which the children love as they can operate the button to get me in and out of the bath!!! As my hands have weakened I also have different aids to help in the kitchen.I also now have carers to help me get in and out the shower and do some housework abd shopping for me which was arranged through the hospice. I never thought at the age of 47, I would be grateful for all this help but I take the attitude that if I get help with these things then I have energy to be with my youngish children which are my priority so I would accept any help you are offered.
You sound as if you are 'trying to be more cheerful' rather than you actually are. Remember we are all here for you - not that you know me that well but I know you have some really good friends - use them!! When people offer help - they mean it so take them up on their offers. You probably won't post my comment now!!!!
You're a brave lady who has been through a lot in a short space of time so be proud of yourself and what you are achieving (especially with your operatic activities)
Love Katex

Anonymous said...

Hi Jools

Those Macmillan Nurses are so wonderful arn't they? A good friend of the family had terminal breast cancer and they were so wonderful, so caring, so marvellous.

I am so glad that you have got a lot of aids to assisst you in your home life. I'd be lost without my perchstool in the kitchen and the shower stool and the grab rail to get on and off the toilet.

Hope you are starting to get over your friends death now.

Sending you cyber hugs.

Best wishes

CC

Anonymous said...

Well done for posting when you're so busy Jools! You are doing so much better at this than me! x x x